How Tinnitus Prepared me for Carmel.

Tinnitus

I was recently sent a rather snooty message by a diocesan priest who used to be a Trappist monk. He was telling me that it was basically impossible for me to live a contemplative life in the context of a family home. He told me my children would not find my ‘requirement’ for silence much fun. He also told me it was impossible to be a contemplative without silence. I decided not to reply. But I do hope he reads this blog post.

The Lord began preparing me for contemplative life at home 5 and a half years ago – two weeks before Annabel was born – by giving me Tinnitus.

It was nothing other than torture. It was 9 months before I began to have even brief periods of not noticing the noises. At its worst it was louder than the phone ringing. In my left ear I had (and sometimes still have) a Morse-code style beeping. In my right ear there was a high pitched whistle. In my head there was a low pitched rumbling, and every so often I would get a really loud pure-tone that would drown out ALL other outside noise. So I would go completely deaf for a few seconds which was absolutely terrifying.

The worst part was that my brain was registering the noise as an outside threat, which meant that I would experience high levels of anxiety during the day and insomnia at night. I would lie awake at night listening to the noise. I had a new baby which meant that when I did manage to fall asleep, I would soon get woken up again by the noise of a crying baby. Then I would feed her, in the silence of the night, all alone in my prison of noise. Then I would take sleeping pills to knock me out. In the morning I would wake up, and the noise was still there. It never went away.

My husband couldn’t hear the noises going on inside my ears. No-one could hear it except me. It was so loud. I was so alone. I am not over dramatising this – tragically, earlier this year a 47 year old woman chose Euthanasia because she was unable to cope with her Tinnitus.

It was too much. I knew I couldn’t die because I had kids to raise, so just accepted that the rest of my life would be filled with a cacophony of beeping and whistling and rumbling.

As I began to accept and improve, my tinnitus therapist kept asking me if my tinnitus was holding me back in any way in my life. After careful consideration I told her “No, I can still still do everything, but… I would like to be able to pray.” She suggested mindfullness. Initially I found this to be life-changingly helpful. It did help me accept the intense suffering I was experiencing in a calm way, but it soon became apparent that there was a fair bit of *wacky* stuff that accompanied it. So I dropped it. But it did lead me into how my own faith viewed suffering. I kept remembering a line I must have read years before, something about “Joy in suffering”. It took me back to the saint who had claimed me for her own 11 years previously – St Teresa of Avila. I didn’t know why she was making an appearance in my life once more, but all I can tell you is that I felt her with me very strongly throughout that time of noise.

As time passed and my life continued in a strange sort of way. I accepted the noise. I cried because of the noise. I masked the noise with the TV and radio and found relief from the noise in my crying baby and my raucous 3 year old son. I couldn’t pray – or so I thought. I cursed myself for wasting all those quiet moments I had previously. I cursed God for giving me tinnitus. I cried and screamed at Him because I was at my wits end and I couldn’t think because of the noise. I told Him I didn’t understand – that there was no point to this. It wasn’t achieving anything. I begged Him to take it away. But He didn’t.

Usually I feel God very close to me, but at that time it was like He was withdrawn to a distance. I felt as if God had abandoned me, like He was enjoying torturing me. I wanted to hate Him, but I loved Him too much to hate Him. I thought about all this a lot.

The removal of silence from my life changed me. I had to concentrate on not becoming overwhelmed by the noise. I got very good at this. It’s amazing what you can do when you are pushed to the brink. As my anxiety began to decrease I used to experiment by sitting down and facing my noise – instead of trying to run away from it. I would actually sit and listen to it – develop a relationship with it almost. But in hindsight what I was actually doing was finding the deeper silence within myself, the silence of my soul. Teresa was guiding me, I could feel that, but I didn’t quite know how.

No-one on the outside could hear my noise. In fact here were only 2 people who could hear my noise – me and God. And when I would sit and listen to my noise, God would be there too. I began to realise that there must be purpose in all of this, but I didn’t know what that was. I allowed Him to sit with me while I explored my noise, and the place inside it was directing me to. He was in that place. My noise had driven me into the desert. Only me and Him were in that place. I was at the core of who I was in Him, and I found peace there. Not audible peace, but spiritual peace.

I began experimenting with this ‘place’, this desert. I began going there more often. I was not afraid there because He was there. Pretty soon I was finding myself in this place all the time throughout the day. It became totally natural to be in this place of extreme calm and inner silence, while I carried on with looking after the children – with the noise was still ringing in my ears.

As I began to recover from the tinnitus I did begin to experience times of real silence once more – something I thought would never happen again. During these times of real silence I would sit and just listen to the silence. Beautiful silence. I would let the silence surround me and go in me and through me and touch my heart in a way I didn’t really understand. It was if the peaceful desert my tinnitus had lead me to was now on the outside too. I felt the silence, and God was there.

It was another 5 years before I had any indication whatsoever of why God put me through that period of suffering. But in hindsight it is now obvious to me that there was no better preparation for the life of a secular Carmelite than this. To be a ‘contemplative in the world’ meant I would most likely be surrounded by noise all the time – which I am. I have the noise of the hoover, the children, my husband, the car etc. Are these bad noises? No! They are beautiful noises – they are the sounds of my primary vocation. “Doesn’t it distract you?” No! How can they distract me – they are the point of my focus! “But when do you get time to pray?” I am praying all the time. I can be here in my kitchen making the dinner, and at the same time I am in my desert with my Lord and Creator. And when I do get quiet periods during the day I sit and enjoy the silence – perhaps in a way you cannot understand if you have not had tinnitus. You could be a Trappist monk for 50 years, but I don’t think you really understand or appreciate silence until it has been force-ably taken away from you. Teresa will tell you that.

Last month during our Carmelite studies, I laughed out loud when I discovered that during her life Teresa had tinnitus too!

St Teresa of Avila, pray for us.

St Paul, pray for us.

St Louis de Montfort, pray for us.

0 thoughts on “How Tinnitus Prepared me for Carmel.

  1. Suffering from fibromyalgia, I had a similar experience when sound became unbearably shrill, harsh noise. I’d been suffering from autoimmune disorders for several years but none of those issues affected me as noise did. The experience drove me into a slower life. I find myself savoring each unique experience; there is immense beauty in each second.

    It’s a shame the priest who had been a Trappist monk found it necessary to scold you as if you were doing something wrong.

  2. Thank you for sharing this beautiful story of God’s grace! I have not had tinnitus, but I have been suffering from post-concussion syndrome for 4 months which has left me very noise-sensitive. It’s kinda funny what the priest said, because I think that even Theresa of Avila would be the first to say that you could be just as “noisy” in a convent as you could be at home with children! Exterior silence doesn’t make one a contemplative. It is a secret meeting place in the heart that can occur despite what noise is raging around us or in us, at least that’s what I think.

  3. So the formerly Trappist monk who became a diocesan priest felt the need to scold you without knowing of your journey? How many others, some of them well known saints, also were scolded by those who thought they knew better? It seems this priest was not given the understanding you were, and that he is still in his own desert. You need to pray for him in those silent moments. And you need to send him a copy of this.

    Out of great suffering, God brings a greater good we are told, and once again I learned of another such example. Thank you for sharing.

  4. I have been suffering from tinnitus for two months now. Most people I mention it to are just like “oh…ok … sorry.” Like anything else, you don’t know what it’s like until you have it. Thanks for this.

  5. Thanks for this. My 14-year-old son has a constant severe headache with sound sensitivity. For a while he could get through a Mass without music, but now he can’t tolerate when someone speaks through a microphone. He’s homeschooled now because school became too much for him. I feared he would be angry at God, but he’s actually very accepting and resigned to probably being stuck with this for at least a couple of years, plus the stress
    of trying different remedies. I hate what he’s going through, but I think its bringing him closer to God.

  6. I was oblivious when reading about “Secular Carmelite”, now that I’ve found the definition, it amazes me there’s no need to be a friar or a nun to meditate on the Lord all day and all night. Funny to think that I’ve been fond of St. Theresa of Avila, because she struggled to find the right confessor. So, if she went through that experience, then its no rarity that I’m in the same situation. It made me feel “normal”. And what are the odds that I suffer from Tinnitus? Thank you for your post.

    For those that commented before me: Be assured that they are remedies to control your “T”. While it may be a burden, it is crucial to surrender to this ailment. I would recommend to write a daily entry journal and observe if any foods/allergies flare or aggravate your “T”. Do you suffer from an mandibular issue (overbite), neck problems, headaches? Any sort of body inflammation close to or in the head can cause “T”.

    Do you play “white noise” (background noise i.e. fan noise, rain noise)? Youtube has great white noise for tinnitus sufferers —- you just gotta find the right one. And of course, finding joy if offering our sufferings to the Lord. If you ever have questions or feel like chatting please let me know. I am here to help. God bless 🙂

  7. Bless you for this article. I am so encouraged that you can pray in spite of Tinnitus. That is the one thing I am struggling to reclaim since suffering this affliction. Inspired by you, I will try to find this inner desert to be with God again.

  8. I’ve been suffering from tinnitus 🙁 and most of the times my friends and colleagues don’t take it seriously, rather they say “OH” and things end. WOW! The are just unaware of the debilitating disease

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